Fri.Feb 23, 2024

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The Mothers Fighting a Scandal Bigger Than Thalidomide: ‘We Were Told the Medication Was Safe’

Mad in America

From The Guardian : “In 2009, Emma Murphy took a phone call from her sister that changed her life. ‘At first, I couldn’t make out what she was saying; she was crying so much,’ Murphy says. ‘All I could hear was “Epilim.”‘ This was a brand name for sodium valproate, the medication Murphy had been taking since she was 12 to manage her epilepsy.

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My Lived Experience Helps Others Heal: Working with Families on the Path to Recovery

Mad in America

W hen the manager of the family program I was working with offered me the opportunity to establish the Family Navigation and Support Program (FNSP), I initially turned it down. Thanks, but no thanks. As a person with lived experience (PWLE) who spent years cycling in and out of hospitals, I had avoided working in them throughout my career. Until then.